CBR Progress Report JAN-JUNE 2014

The Community Based Rehabilitation (CBR) programme for Children with Disabilities is operational in 42 villages of 10 Gram Panchayats in Nimapada block starting from 1st January 2014.

The main objectives of the project were:
To increase of access to knowledge, skill, information and better services for 330 differently able children and family members.
To sensitizing and adopting appropriated advocacy strategy for all community level stakeholders.

Activities conducted in the first six months:
A baseline survey was conducted in concerned villages by 10 special educator-cum-surveyors after an orientation programme on 16th January 2014. The team of surveyors identified 330 children with disabilities as the direct beneficiaries of the project. The data was collected from primary sources by door to door survey in which interaction with the family members were conducted and with additional information from secondary sources like AWWs, PRI members, ASHA and SHG members by focused group discussion and one-on-one interviews. Individual profile of each identified child with disability has been prepared and Individualized Education Plan (IEP) has been developed as per the requirement of the child for their support for development.

Community meetings were conducted in 6 locations viz. Sagada Deuli, Ratilo, Badrikilo, Chadigan, Badaninigan and Vantigram and resource centres opened. These resource centres are providing therapeutic services, functional education for those who cannot attend the school, recreational activities, counseling and guidance to the parents on management of disabilities. Home based management of children with disabilities has been worked out for those who cannot access the services of resource centres. Resource centre services are being provided 5 days a week from 8.30 am to 1.00 pm. Home visits are being conducted every Saturday of the week.
To build up the capacities of the project staff on baseline, types of disabilities, causes of disabilities, preparation of profile and IEP, the schemes and facilities for the children with disabilities, and community mobilization training programmes were conducted in-house in three phase on 8th January 2014, 18th and 19th April 2014, and 4th June 2014 at CBR project office, Nijoga Kasoti, Nimapara.

In order to build the capacities of the parents, community volunteers, PRI Members, OLS has conducted the following programmes:
3 phase one day parents training programme on early identification and intervention of children with disabilities on 11th May 2014 at Sailo U.P. School, 18th May 2014 at Badamachapur and on 25th May 2014 at Salang. Nearly 146 parents participated in the training programme.
One day Community Volunteers training programme on early identification and intervention for children with disabilities was conducted at Nimapada Town Hall on 24th April 2014 in which 43 community volunteers participated.
3 phase one day PRI Members training programme was held on the roles and responsibilities of the PRI members in creating a conducive environment for the children with disabilities and the schemes and services for the development of the persons with disabilities were the main points of the discussion on 27th April 2014 at Salang G.P.Office, 22nd June 2014 at Tampala U.P. School, and on 27th June 2014 at Hansapada in which 128 PRI members participated.
All the children have the right to be protected from harm. All possible efforts need to be put for attracting the attention of the government for rehabilitation of the children with disabilities. In order to advocate for their rights, present their views and concerns and to achieve the main objective of the community based rehabilitation programme, the skill of the children with disabilities, and ensure protection and realization of their rights, 42 inclusive children’s clubs have been formed by including 108 children with disabilities.

42 circle of support groups comprising of parents, PRI members, teachers, Aganwadi workers and others members of the community have been formed after conducting series of group discussions.
The project has facilitated the receipt of disability certificates for 31 children with disability in the single window camp held at Nimapada on 18th February 2014 organized by the Sarva Shiksha Abhiyan and the block authority of Nimapada and the Chief District Medical Officer, Puri. During the period OLS has facilitated to provide escort allowances benefitting 16 persons o the children with disability.

The main objective of the project is to developing the child protection mechanisms in the operational area and implementing the best practices in partnership with government and others stakeholders. In this connection for the first time an annual day celebration of Sambhab Special School, Puri in collaboration with CBR project was organized on 30th January 2014 at Puri town hall. Parents of children with disabilities, PRI members, government officials, press, Cabinet Minister, Chairperson of the Puri Municipality, and social activists participated. During the function some aids and appliances were distributed among the children with disabilities with the support of the Puri Municipality. In view of the demand put forward by the CBR project team supported vocally by the children with disabilities and their parents, the Chairman of Puri Municipality announced to provide permanent land for a Special School to be run by OLS at Puri town.

The CBR project staff members and the community volunteers took part in the community coaches training programme in collaboration with the Special Olympics Bharat-Odisha under the “Scheme for promotion of games and sports for persons with disabilities” of the Ministry of Youth Affairs & Sports, Government of India to develop the capacities of the community level workers and activists for meaningful inclusion of the children/persons with disabilities through sports.

OLS has developed posters on bus concession provision of the state government and a brochure explaining important information on facilities and services for persons with disabilities in collaboration with the Directorate for Welfare of Persons with Disabilities, Women & Child Development Department, Government of Odisha. Wall paintings depicting the rights and entitlements of the Children/Persons with Disabilities and the welfare schemes for the PwDs of the Government have been done in vantage locations in 10 villages. These IEC materials have been put up on the walls of the Angan Wadi Centres and being used by them to create awareness among the women of the community. The materials were very helpful for creating awareness in the community on disability and sensitizing not only parents but also the service providers.

Indicator: Individual Education Plan prepared for all targeted children

Individual Education Plan has been prepared for all the 330 identified children with disabilities. The Multi Rehabilitation Workers are visiting the homes of each of the direct beneficiaries once every two months. Majority of the targeted children with disabilities are being provided services in the Resource Centres. The Field Coordinators are visiting the homes and assessing the progress in order of priority – mild, moderate, severe and profound, with mild being the least. The Project Coordinator visits the homes at random choosing from each FC’s field. The documentation and progress are reviewed in the monthly review meetings held with the FCs, MRWs and the Local Facilitators. The Chief Executive Officer of the organization also visits to monitor the progress every month in which field visit is a part.

Indicator: Number of children referred by ICDS, people’s representatives and health facilitators for intervention and treatment.

Children with disabilities number 6 from 3 different locations have been referred by the people’s representatives immediately after their training programme. Records are being maintained for referral by others. These are verified by the FCs and PC and the CEO from time to time.

Indicator: Number of parents and community activists trained for Home Based Management programme.

Parents of children’s with disabilities numbering 46 and 13 community volunteers have been trained. Monitoring is conducted through home visit by the project functionaries.

Indicator: Number of family members, community members, members of SMCs, CBO, PRIs sensitive towards children with disabilities and disability issues, and taking up proactive steps for removal of taboos, hurdles and contributing to better environment for them.

The Sarpanchs of all the 10 Gram Panchayats have become sensitive toward the rights and entitlements of the children with disabilities and are taking proactive steps for their inclusion and removal of barriers and hurdles. The project functionaries are in constant touch with them to follow up on certain issues and to goad them to do be involved more often in the issues.

Indicator: Number of children with disabilities in inclusive children’s groups.

Children with disabilities numbering 108 have become members of 42 inclusive children’s groups.

Indicator: Number of parents’ support group formed and their capacity built.

Parents’ Support Group numbering 42 have been formed after focus group discussions. However capacity building training for them has not been held.

Indicator: Number of IEC materials developed, prepared and utilized/being used by stakeholders.

A calendar type wall hanging poster on the milestones have been developed, printed and distributed to 279 Anganwadi Workers and 60 parents. The posters have been put up at the Anganwadi Centres and the Houses of the 60 families.

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